My husband, Billy, has genetic mutations that are ‘driving his disease’. These mutations are FLT3 and KMT2A. He’s been taking Gilteritinib for the FLT3 – it is a FLT3 suppressor. There’s a clinical study for a KMT2A suppressor at IU Simon Cancer Center. Billy goes there to be assessed for the trial in 2 days. Funny thing, though. He just had a bone marrow biopsy and it came back with no detectible blasts and NO genetic mutations. None. I know that mutations can come and go, but it still feels like a miracle. I pray every day for God to heal Billy. I know He can. Maybe He did? And Billy is supposed to start chemo round 4 in 3 days. All this treatment for a man who is in remission. I know too little about AML, I guess.
We just went to New Buffalo, Michigan last week. We rented a big house and all our children, spouses and grandchildren plus Billy’s sister came and we all stayed together for four wonderful days. We swam in the lake which was cold but bearable. Our oldest son booked a fishing trip and they caught a big salmon and a lake trout. Four of the grandkids went. They all had a blast. We rented a jet ski and my daughter and her husband rode it to the beach and the kids switched off driving it with spouses and grandkids as passengers. Billy and I walked all the way out to the markers and I jumped the waves. He was very fatigued and his muscles all hurt all the time, but he did really well. We ate dinner out every night and had fun. I’m ready to go back. I wish we could all be together all the time like that. I wish summer wouldn’t have to end.
The side effects of Gilteritinib are what is making Billy feel so bad. I don’t know if they can reduce the dosage but I’m going to ask.
I’m grateful for our vacation and my family. God, please heal Billy. ❤️
A Little Bit of Everything, With Love 