MDS

Myelodysplastic Syndrome. The official diagnosis. Billy and I were in shock for at least a day. There are many subsets of the disease, which is confusing. He also has elevated blasts, which isn’t good. Dr. Gallardo referred him to an MDS specialist in Indy, and we see him on Monday, June 10. Joanna’s coming home today and will go to the Appt with us. We need to write out a long list of our questions. #1, are you sure he has this? #2, how much time do we have? It’s horrible. We’re both working, though Billy has to take it really slow. He said he gets half done of what he used to do. Work is a distraction. But in the evenings, we sit and silently wonder what’s going to happen. If Billy has only months to live, what should we be doing/worrying about. Shouldn’t every moment be filled with things that bring happiness? But then doesn’t that bring the bittersweet unhappiness? We’ve made it through his kidney cancer, please God help us through this. I beg God every day to heal him, telling God I can’t be without my Billy. I can’t live without him.

In another completely different note, we went to Chicago last weekend to see s Joanna perform. She’s now the Artistic Director of Trifecta Dance. The show was awesome. Her dancing and choreography was gorgeous. She and Nick are closer than ever. I think she’s going to be fine.

And of course, it was her birthday, too. A bunch of dancers and her friends all went to a restaurant after the show. We brought a cake so she could make a birthday wish 💗. Our little girl is 31. We’re very proud of her.